Family Member History Data Absent Reason

Context and value of Data Absent Reason(s) (DARs) indicating why, for a patient's family history, information is missing or not recorded either about health concern(s) or about the family member having said concern(s).
When a DAR is specified, this class shall be populated, but Family Member History shall not.
Conversely, when an actual family member history record is specified, the Family Member History class shall be populated, but this class shall not.
In this class, 1 of the 2 the DAR Codes - the attributes Reported Family Member Data Absent Reason Code and Health Concern Data Absent Reason Code - must always be populated (but not both).
Optional DAR context is provided by the 2 relationships from this class: to Reported Family Member and to Family History Health Concern.
Use cases as kinds of practitioner-patient dialogue:
(1)
- Practitioner: Is there cancer in you family?
- Patient: Declined to answer.
=>
- relationship to the Family History Health Concern record for cancer with Has Health Concern Indicator = True is populated.
- relationship to Reported Family Member: not populated.
- Reported Family Member DAR Code: not populated.
- Health Concern DAR Code: populated (e.g., asked-declined).

(2)
- Practitioner: Is there cancer in you family?
- Patient: Yes.
- Practitioner: Who in your family has it?
- Patient: Declined to answer.
=>
- relationship to the Family History Health Concern record for cancer with Has Health Concern Indicator = True is populated.
- relationship to Reported Family Member: not populated.
- Reported Family Member DAR Code: populated (e.g., asked-declined).
- Health Concern DAR Code: not populated.

(3) Practitioner: Is there cancer in you family?
- Patient: No.
=>
this class is not populated; instead, the Family Member History class shall contain a record having a relationship to the Family History Health Concern record for cancer with Has Health Concern Indicator = False.

Appears in

Constraints

Unique key(s)

  • Patient, Reported Family Member if specified, Family Member Health Concern if specified
  • XOR (Reported Family Member Data Absent Reason Code, Health Concern Data Absent Reason Code)

Stereotype(s)

n/a

Attributes

AttributeTypeMultiplicityAttribute note
Reported Family Member Data Absent Reason Code Codeable Concept 0..1
Uniquely specifies the reason that family member information is missing or not recorded for a patient's family history (e.g., asked-declined, not-asked, unknown). Value Set: http://terminology.hl7.org/CodeSystem/data-absent-reason
Health Concern Data Absent Reason Code Codeable Concept 0..1
Uniquely specifies the reason that health concern information is missing or not recorded for a patient's family history (e.g., asked-declined, not-asked, unknown). Value Set: http://terminology.hl7.org/CodeSystem/data-absent-reason

Relationships

From class From multiplicity Relationship To class To multiplicity
Family Member History Data Absent Reason 0..* documented in Encounter 0..1
Family Member History Data Absent Reason 0..* for Patient 1
Family Member History Data Absent Reason 0..* applies to
{Family Member Has Health Concern Indicator= True}
Family Member Health Concern 0..1
Family Member History Data Absent Reason 0..* applies to Reported Family Member 0..1
Family Member History Data Absent Reason 0..* has Clinical Information Life Cycle Event 0..*

Contact us

If you have questions about this initiative, would like to be added to our stakeholder notification list or would like to participate in our consultations, please email us.

connectedcare@cihi.ca

How to cite:

Canadian Institute for Health Information. Family Member History Data Absent Reason. Accessed November 02, 2026.